One of the most effective ways
to increase awareness about this disease is to communicate with the
public. The media is the best way to reach everyone. Through the
various mediums - TV, radio, newspaper, and the internet we can
obtain this goal. The programs established in the PR committee
enables those interested, the tools and material to reach out. Every
member of TARA can help improve awareness by speaking with their own
local newspapers, contacting the TV personnel handling medical
information and handing out PR packages to medical professionals,
just as some examples. As an organization, TARA provides it's
members or any other interested party, a fact sheet specifically
addressing the facts about Takayasu's Arteritis and the
organization.
TARA manages the following programs:
Maintain PR Database:
database of: media sources submitted by members; general media
sources – TV/radio stations (NBC, USA Today, etc.); listing of
medically oriented organizations; internet based organizations and
the appropriate points-of-contacts for each.
Maintain PR material:
develop and maintain PR package for members to complete;
develop "standard" multi media "Press Releases" for regular
submissions to various media; develop "as needed" "Press Releases"
for submission to appropriate media such as those needed for
fundraising campaigns, current happenings, etc.; update as needed,
brochures and fact sheets; distribute conference video and power
point presentations; obtain permission from appropriate sources for
reprinting of media items; Provide shipping services for
conferences, video’s etc.
Maintain Current Events:
Publish quarterly newsletter; locate and
maintain calendar of events: ACR, NORD, etc.
Communication within TARA:
Collect information from other TARA program
areas for inclusion in newsletter; Provide all TARA mailing
services.
