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    Takayasu's Arteritis is a rare disease. Most patients, family members and friends feel alone and powerless. TARA Membership enables us to find, form, and maintain a connection with all those worldwide who are touched by TA. TARA's  is responsible for:

A) Member Database - Search for new members- patients, families, friends, medical professionals; maintain membership forms; conduct new membership drives– utilizing educational material.

B) Communication with Public - Send welcome and membership letters; manage membership package distribution: provide knowledge of: the website, subscription to the newsletter – The Bridge, access to educational material, involvement with the Keep- in-Touch (KIT) program/support Network program; provide knowledge of conferences; send out sympathy letters as required; collect "membership donation" via mail and internet- (MC/Visa); acknowledge "membership donations" with appropriate receipt

C) TA Networking System maintain both systems of patients and doctors: the program for Patient/General Support (KIT program) for those members who want more interpersonal contact with others or need to share or obtain important facts and Medical Professional Support Networking system.

D) Liaison within TARA - Give demographics of patients to researchers; obtain story of TA patient members and stories of those who contact TARA, if not a current member for research and education purposes; collect and compile research data forms for future reference.

 

If you would like additional information on Membership, please contact TARA at: admin@takayasus.org.